The first time I read this article “Visiting Kathy – A Severe MCS Sufferer“, I literally cried. But that was only one of many reactions I had. I wanted to print the story and send it to every one I know – friends and family. By the grace of God, I’m not there, yet. But I fear I may be someday. It can be very frustrating trying to explain to people why you don’t want to visit their house, or get in their car, or ride in a car with them.
I would also like to talk with Kathy. To find out how she finds the strength to keep going. My guess is that Kathy doesn’t go out much. There’s so much you encountered when you go out in public. Vehicle exhaust, cigarette smoke, perfumes and other personal products. And then the “air fresheners” as they are so (mis-)named.
I’ve had to severely limit the places that I go, but I still get out. My reactions seem to get worse, in spite of the doctor’s best efforts. I’m afraid that one day I will become a prisoner in my own home.
And yet, we still keep going.